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The European Reference Networks for rare diseases (known as ERNs) are part of the European Commission’s initiative whose purpose is to put in contact professionals and researchers with a high degree of specialization in certain rare diseases, low prevalence, and complex pathologies.
The objective of these "virtual networks" is to discuss the diagnosis and the best possible treatment for patients with rare diseases throughout Europe, contribute to the study of these pathologies, and offer the highest quality of care.
The ERN accreditation requires the centers that are part of the network to serve as a point of research and knowledge, to participate in the scientific studies, to offer treatment to the patients of all the member states, and to have suitable facilities to be able to do it. The network works to disseminate services and expertise within the European Union.
The professionals at SJD Barcelona Children’s Hospital are involved in 21 European networks for complex diseases of the 24 existing for children, being one of the most recognized in Spain by this European network. The following is a list of the clinical departments and units acknowledged as reference centres for rare diseases as full members.
List of ERN accreditations of SJD Barcelona Children’s Hospital
Paediatric Cancer (Haemato-Oncology). Oncology and Hematology Department.
Rare and low-prevalence complex coronary diseases. Heart Department.
Rare Endocrine Conditions. Endocrinology Department.
Genetic Tumour Risk Syndromes. Oncology and Hematology Department.
ERN-Skin: Rare and Undiagnosed Skin Disorders. SJD Barcelona Children’s Hospital and Hospital Clínic group. Dermatology Department.
Bone Disorders. Orthopedics and Traumatology Department.
Eye Diseases. Oftalmology Department.
Congenital Malformations & Rare Mental Disability. Institute for Rare Childhood Disorders (IPER).
Craniofacial anomalies. Neurosurgery Department
Rare Hematological Diseases. SJD Barcelona Children’s Hospital and Hospital Clínic group. Hematology Department.
Rare and Complex Connective Tissue and Musculoskeletal Diseases. SJD Barcelona Children’s Hospital and Hospital Clínic group. Reumatology Department.
Primary Immunodeficiencies, Autoinflammatory Disorders, Autoimmune Diseases, and Paediatric Rheumatic Diseases. SJD Barcelona Children’s Hospital and Hospital Clínic group. Allergy and Immunology and Rheumatology Unit.
Transplantation in Children. SJD Barcelona Children’s Hospital and Hospital Clínic group. Nefrology Department.
Vascular anomalies. Dermatology Department.
How the ERN work
