Patient portal
We use diagnostic techniques that allow us to offer a faster and more accurate diagnosis, as well as access to new personalized treatments.
The Pediatric Hematology Department at the SJD Barcelona Children's Hospital is a national reference center for diagnosis, treatment and follow-up for children and adolescents with hematological diseases. Some, such as iron deficiency anemia, are very common, but many others are rare diseases which affect very few children around the world.
In our department, made up of a nationally recognized, highly experienced team, we use complex diagnostic techniques (functional studies, bone marrow aspiration, genetic studies, etc.) which help us to give our patients a swifter, more accurate diagnosis, as well as access to new personalized treatments.
The primary focus of our work is to provide patients and their families with comprehensive information, based on a precise diagnosis, in order to offer suitable treatment and, whenever possible, allow them to access new drugs in the setting of clinical trials.
We work in three principal units, in which a multi-disciplinary team strives to ensure that care is focused on patients and their families. We are particularly interested in responding to their needs in an individualized manner.
Accreditations
- European Commission (ERN): EurobloodNet.
- Spanish Ministry of Health, Consumer Affairs and Social Welfare (CSUR): Hereditary erythropathology. Congenital coagulopathies. Spinal cord failure. SJD Barcelona Hospital and Hospital de Sant Pau group.
- Catalan Health Service (XUEC): Hereditary erythropathology, congenital coagulopathies and spinal cord failure.
Why SJD Barcelona Children's Hospital?
We are a Unit with international and national recognition.
Benchmarks in the care of pediatric hematological diseases
We are a Unit with international and national recognition.
In Spain, we are a reference center as experts in the diagnosis and treatment of hematological diseases in children and adolescents.
Although we treat all kind of hematological diseases, SJD Barcelona Children's Hospital is recognized by the National Health System as a national reference center (CSUR) for the treatment of erythrocyte disorders (rare anemias).We also participate in the preparation of national protocols and clinical guidelines for the treatment of different hematological disorders.
The Unit has been accredited by the European reference network for rare and complex diseases (ERN) in hematology EurobloodNet.
We adapt the treatment to the needs of each patient.
Care focused on patients and their families
We adapt the treatment to the needs of each patient.
To each patient, we devote all the specialized resources needed to offer high-quality, personalized care.
We also take into account the needs of each child or adolescent to offer them the best available treatment and human support from our entire staff.
We carry out training programs for patients and caregivers.
Specialized nursing team
We carry out training programs for patients and caregivers
In our department, we have a specialized, highly-qualified nursing team which carries out specific training programs for patients and families.
Our principal objective is for patients and their caregivers to take responsibility for the self-administration and control of treatment to gain in autonomy, improve their compliance, and, in short, their quality of life. Of course, constant close contact is maintained at their homes, through different channels.
One example we are particularly proud of is the self-control program for oral anticoagulant therapy In pediatric patients, a pioneering project in Spain.
Our patients benefit from our participation in clinical trials. We also use this experience for the early application of new therapies.
We have modern installations designed to improve the experience for pediatric patients when they have to come to the Hospital.
Our facilities
We have modern installations designed to improve the experience for pediatric patients when they have to come to the Hospital.
Blood analyses, the administration of treatments and transfusions are carried out on an outpatient basis in the nurse managers' clinics and in the Day Hospital.
We have the A10 program, pioneer of transition of the pediatric patient.
Coordinated transition to the adult hospital
We have the A10 program, pioneer of transition of the pediatric patient
The SJD Barcelona Children's Hospital is the centre that cares for patients up to 18 years of age. The transition process to the adult hospital starts from the age of 17, following the centre's A10 programme protocol, thus ensuring the continuity of medical care to patients, their education in managing the disease and the psychosocial and administrative management support that is required.
Indicators
Annual visits
Online care
New patients with severe diseases per year
Patients with genetic study
Oral anticoagulant treatment self-control program of pacients
Chronic disease attended to in outpatient area patients per week
2020 data
Specialities and services
In Spain, we are a reference center as experts in the diagnosis and treatment of hematological diseases in children and adolescents.The Unit is responsible for controlling all anticoagulant treatment.
Pathologies we treat
Treatments we offer
Care and research professionals
- Jessica Montesinos Méndez (TCAI)
Research and clinical trials
Our research is conducted in the setting of the SJD Research Institute, in the pediatric leukemia and blood disease group, where we conduct translational research, with the aim of applying advances in biological diagnosis and the most innovative treatments in practical care to pediatric patients with blood disorders.
We also participate as an Associated Clinical Group, within the Hereditary Cancer and Related Syndromes Group, in the CIBERER network.
Principal research projects
- Own research projects in thrombosis and bone marrow failure.
- Multiple clinical trials molecules under development for the treatment of hemophilia, thrombosis, Immune thromboctyopenia (ITP), and sickle cell anemia, among others.
Teaching
SJD Barcelona Children's Hospital is a university hospital linked to Universitat de Barcelona. We share our knowledge and we train professionals so that they can specialize in high-complexity medicine.
Every year, in the Hematology Department, we offer a refresher course on Pediatric Hematology.
News
Healthy habits
Without enough iron, the body cannot make hemoglobin and may contain insufficient red blood cells.