New technology allows the SJD Barcelona Children’s Hospital to put forward tools for sharing information between families and healthcare professionals. This exchange of information is a basic step in expanding knowledge of pediatric disease and improving research thereof.
Share4Rare: a social network for rare diseases
Rare diseases are those that affect fewer than 5 out of every 10,000 people worldwide. Their low prevalence means that our knowledge about them is scarce and limited in most cases. To combat the isolation of patients and families living with these conditions and to promote their research, Share4Rare was created.
Share4Rare is a digital platform that connects patients, caregivers, and researchers of rare diseases worldwide with the aim of sharing knowledge and promoting collaborative research. Thanks to the donation of data and clinical information from patients and families around the world, the tool enhances the education, communication, and research of rare diseases and improves the quality of life for those who suffer from them.
Collaborate for Rare Diseases
Your help can achieve great progress in research.